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The idea of somehow restricting the HR may be attractive as a means of curtailing strenuous activity. The guidelines do not address the frequency of surveillance for individuals with BAV and no enlargement of the aorta. Aortic stenosis has been reported to occur in as many as 72 percent of adults with a congenital bicuspid aortic valve, with peak incidence occurring in the 5th and 6th decades of life. The bicuspid aortic valve opens and closes abnormally, and can result in leaking of the valve. I otherwise feel very healthy, other than (I think) normal slowing down that comes with age. Looking through the reader comments here at the blog and reflecting on the athlete inquiries Ive received, I thought Id cover some of the major issues. I have a 15 year old son with a BAV, Aortic stenosis, Noderate regurgitation and dilatation of his ascending aorta. CT or MRI may be more accurate. Since you have the ready info about your aortic sizes over time, I will guess that you have a doctor or cardiologist that you are working with. Ive a BAV with the fusion being between my right coronary and non-coronary leaflets. Log in, September 26, 2013 By Larry Creswell, MD 155 Comments. Best to continue to work towards identifying cause(s) and getting any needed treatment. Many thanks again for answering this. On Ocotber 23, 2020, we learned that Arnold Schwarzenegger had a third heart valve procedure, a re-replacement of his aortic valve replacement. What is the average life span of a tissue valve? Its awesome to see you are diligent at responding to people also. Reply. I had a Type A aortic dissection of the ascending aorta that extended into the descending aorta terminating near the femoral arteries. Hope to hear back soon. He is certainly expert in the area of drug therapy to reduce the rate of aortic enlargement. We saw cardio in April again and my sons symptoms are the same and no progression on the aortic regurgitation. Bicuspid aortic valve refers to a spectrum of deformed aortic valves with two functional leaflets or cusps which are often unequal in size. I am healthy, strong, and active. In addition, the Left ventrical has slowly increased over this same time period from 5.87 to 6.6 cm. My son is devastated, depressed, and wanted to play ball in college. I have also spoken with Boston Childrens Hospital who have been very helpful and enlightening. Ordinarily, we reserve operation for patients with severe aortic regurgitation who have some decrement in the LV function. Im a 30 yr old male, training 5 times a week rowing and strength training. Congenital heart issues affect approximately 40,000 people born each year in the U.S. and are one of the most common types of birth defects. The fusion (sticking together) of the valve leaflets causes abnormal valve opening and closing. To the extent that any operation fixes the stenosis or regurgitation, we might expect better efficiency from the heart. No changes in regurgitation status (aortic regurgitation LVOT 19%); Any person in my family there was no problem with the heart. This visit we were told it could be a few years before anything needs to be done. These differences of opinion may be legitimate. In large-scale pre-participation cardiac screening programs for young, competitive athletes, BAV is one of the most commonly identified abnormalities. Prescriptions for safe exercise will need to be carefully tailored to your particulars. I got Edwards magna perimount 25mm bovine AV and Valsava graft for aortic root replacement. We are wondering is there a science to knowing when he should have the surgery? Thanks very much. But Ill check it as soon as possible. There are many surgical options depending upon the particular circumstances. This is true at rest and may be even more so during exercise. Tyler. As a consequence, these individuals develop earlier calcification of the valve leaflets, leading to narrowing, or stenosis. Interestingly, bicuspid valves are one of the most common forms of heart valve disease. Thank you for your expert opinion. There are just so many causes of shortness of breath, lightheadedness, and chest pain.even besides the heart-related causes. In some cases, the aortic valve can be repaired and the enlarged aorta can be replaced with a Dacron tube. I do think that aspects of the martial arts are strength-related. looking forward for healthy life without surgery any possibilities??? 1. When I had my valve replaced I was told that it would have a 20 year ish life but I think it should exceed that. Most probably not pericarditis cause I had it once so I know that pain type, but again, maybe its some other type. Thanks! It is quite frustrating, Im running with some guys that have a hard time believing that I run a marathon. No thrombus, vegetation were noted I know what theyre saying and after that I know that I have mixed feelings because I feel depressed about not being active like I used to be, but then I feel selfish as I am not being grateful. They ruled out Marfans syndrome because his aorta was dilating. My 25 year old son was just diagnosed with BAV AR (3+). I am a 60 yo female who has been active my whole life. Im wondering if you can advise me. I cant imagine life without CrossFit, but I wont be able to continue will I? His cardiologist said he cant play. I appreciate your response, thank you for taking the time to write me back. The doctor said it wasnt serious, but that I should keep watch on it every year. I agree that your doctor(s) are in the best position to offer advice regarding safe exercise based upon your particular circumstances. Bicuspid aortic valve is a heart problem present at birth. Search for heart hospitals that specialize in heart valve treatment. At 4.0 cm, its important to be thoughtful about activities. Look forward to your reply and thanks for your time. Based on the information Ive provided, I would greatly appreciate your advice and opinion on the matter. Advice here will be based on opinion rather than accumulated evidence in large numbers of children with BAV. I know they really should get checked, and they will. They may also disrupt the normal flow of blood through the heart. Went through the process of antibiotic therapy and. Here are some celebrities that experienced severe heart valve defects and had to have either heart valve replacement and heart valve repair surgery. That means it is a congenital heart defect. Bicuspid aortic valve (BAV) is a genetic condition that causes the aortic valve to have two leaflets instead of three. He told me to carry on as normal and to take 300mg Irbesartan per day. The numbness/tingling has me constantly worriedand the slight chest pains have me always thinking is that my BV or Aorta causing issues?. Thank you for your time. I was physically examined by a medical board at new Delhi for the post of a chemist in geological servey of India but they declared me unfit as I have BAV . My son will seek a repair when his conditions deteriorate. I have bav with mild dilation of aorta 39mm. Something they suspect is also from birth but never previously picked up. Over the past 3 years, my endurance has declined significantly, and now I cannot run a lap on the treadmill without some walking; however, my numbers from the semi-annual utrasound have not changed much. Thanks. He was just diagnosed with functional BAV due to partial stuck together of two leaflets (out of three, as far as I understand, they are equal). Down side: durabilitythe borrowed valve doesnt last forever; it will deteriorate and need re-replacement at some point. Hi Dr. Creswell. My exercise is limited to 30 minutes of moderate carido, with no weights. I exercise, eat well and keep my weight down. Sometimes patients with mechanical aortic valves report that they lose a bit of their top-end athletic performance. The aortic valve prevents blood from flowing back into the left ventricle of the heart. "I have heart disease, and I found out about five or four years ago, the singer, now 49, told PEOPLE in 2008. Stories of Bicuspid Aortic Valve. The confusing thing I hear is some cardiologists telling BAV people not to life over x lbs. Contact Editor. Males are about twice as . Im in Philly today but Im from Central NY. I dont doubt there is variability in recovery among athletes who have operation for AVR and aortic replacement. Dont see why HIIT should be excluded. Running it is important for me but if it has a problematic effect , I would opt for power walking I think we should have a choice??? That said I have a resting HR of ~40 (always have). I have recently found out that I have aortic regurgitation will soon be needing surgery. Consensus guidelines suggest that (athlete) patients with BAV and moderate enlargement of the ascending aorta should curtail their strenuous static (eg, weight-lifting) and endurance sporting activities because of the risk of aortic rupture or dissection. Finding this site is such a relief / source of hope for me thanks so much Dr. Larry!. I'm new to this group, so I'll be rather short. Individuals with BAV can develop progressive narrowing or obstruction of the valve, leaking of the valve, and . Did you run? Thats the reason we try to place the largest possible substitute valve in patients who need replacement. Vanity Fair may earn a portion of sales from products that are purchased through our site as part of our Affiliate Partnerships with retailers. I probably get more inquiries from athletes with bicuspid aortic valve (BAV) than any other single heart problem. Probably wise to follow the advice of your doctors who know the details of your situation. And any valve substitute (with valve replacement) is clearly not as efficienteven if the substitute is better than a diseased valve. Its a hard thing to describe to my cardiologist that my legs and HR are not cooperating when the pace picks up. Sory but I dont speak very vell english. Congrats! I have repeatedly asked each follow up, if continued marathon training is OK. Im always told it is fine with the old adage of listening to your body. Bicuspid aortic valve (BAV) disease is the most common congenital heart defect, as it affects 1.3% of the adult general population . One young man's complications from a bicuspid aortic valve were life-threatening, but perseverance and expert care helped him make it through. I had it replaced in 2014 and am now 16. Learn more about Baldwin Publishing Inc.editorial policy,privacy policy, ADA compliance andsponsorship policy. Could I continue to train and just cut out the blood chokes? Normal biventricular size and function, no scar. Hey is almost looking forward to getting it fixed. This blog helped me a lot in my panic days, it put me at ease when I was worrying to much, just to see and to know your enemy and to realize that you are not alone is great help. John Ritter - Actor - passed away due to undiagnosed CHD at age 55. My doctor says i use losartan for decrease my blood presure. "Heart disease is the number one killer of all Americans, the number one killer of African-Americans and the number one killer of women, so I shouldve been put on notice since Im three-for-three. Another possibility that you havent mentioned deserves some discussion with your sons doctor(s) or surgeon. Bicuspid aortic valve can be found in 1% to 2% of the general population . To me, you know your own body and what you can manage whilst straining as little as possible. Eventually I will need valve replacement. Is strength training that involves only using ones own body weight ok with mild BAV issues, or is all strength training out? I certainly know runners, cyclists, and triathletes in that circumstance who are active and doing well. You can see my post above, from 26th of april. I dont think theres a way to predict the future in this circumstance. Surgery. No one loves life more than I do, read the statement. Hi . Keyhole just refers to the type of incision used for conventional valve replacement like you had. Have you heard about the PEARS procedure? Not sure I have something specific to suggest for additional reading.and I dont know where to steer you about a knowledgeable trainer in the UK. Can BAV cause sudden death incidents in otherwise healthy 40 year old males? Very likely an operation will be needed at some point in the future. The doctors tell me I will be able to run again at a level near to what Im accustomed to (50-60 miles per week) but are reluctant at this point to specifically tell me the limitations and restrictions Im to endure. The lines are the edges of the valve leaflets that open and close to let blood through. In April of this year (2016), I discovered I had a BAV in the worst manner possible. Is this a normal side effect of the heart condition or not? Yes, moderate aortic root dilation can remain stable. What have I observed and learned in the quarter century since? Given that risk, the current American guidelines recommend screening those children with echocardiogram to identify affected children. James Cameron checks in from Pandora with a status report. If so, youre far from alone. Since Im very active in sports, Id like to have your opinion on it. Im a 51 year old male who had aortic repair (5.8 cm) and bovine valve replacement AVR surgery 2 years ago. I found myself in emergency surgery 12 months ago with 50% leakage, an enlarged heart and an ejection fraction of 30. From afar, I dont have much to add. The doctor looked at the results and told me to limit physical activity (running), because it can lead to heart failure in future. I would prefer not to stop. Hi, my name is Hector and I am 34 years old. I eat relatively well, but sometimes having those pizzas and burgers late at night I had to change that.. Index to blog posts and online articles, Filed Under: Heart problems Tagged With: aorta, aortic aneurysm, arotic valve, bicuspid aortic valve, congenital heart disease, heart, heart surgery. Thank you for taking the time to respond to my post. I dont know all of the important details. Me, i`m nearly 43, male and have BAV. Problem is, Im getting older (52) now and Im wondering the effect age, and should I be asking for more frequent followups. I take BP medication namely Amlodopine & Ramipril which has lowered my BP. host, 76, suffered a mild heart attack in 2012. Some people with bicuspid aortic valve will have symptoms in early childhood. From afar, its hard to know what might be responsible for your symptoms. Film star, former California governor, and seven time winner of the Mr. Olympia title Arnold Schwarzenegger published positive images to his social media platforms on Friday as he recovered from heart surgery. What should I do ? In 2006, Adam founded HeartValveSurgery.com to educate and empower patients. Thanks for sharing your sons story with BAV. , Bicuspid Aortic Valve Disease, Acquired Valve Disease. In the blog post, I talked about the circumstances when operation is needed.as well as when sports are generally safe. However, I absolutely love being competitive at running, and dont want to jeopardize that either. Okay, thats greatbut I left feeling uncomfortable with the diagnosis. Can you please shed some light on this is the sport performance supposed to gradually diminish (seems to go to zero for me) before the operation is needed? when I discussed this with my Dr. he reassured me that its not my heart causing it. Can you tell me what is to much, are push ups or pull ups heavy lifting, is 3 time per week 5 km running with 10-12 km/h pace to much? I am wondering if you know anything about these drugs and how they can impact aortic growth? Im am in stres ?! Do we have a choice with him only being 15??? To much info to much detail so much information and advice. Lynn. Thank you very much for your answer. We all appreciate it. They can occur separately or together. Im not looking forward competitions nor marathons. My biggest concern is whether I will be able to return to my previous level of physical activity and level of fitness. Can you direct us to ANY research on the effect of endurance sports on AVR patients? Im paranoid to exercise too much for fear that I will do damage to the valve. Patients need operation if there is severe stenosis or regurgitation of the aortic valve.or if the nearby aorta becomes moderately enlarged. However, I always performed poorly when it came to the top end fitness tests e.g. Many heart conditions can be controlled or repaired once theyre diagnosed. Compared to our own native valve, all of the available prosthetic substitutes have a small degree of aortic stenosis built in, unfortunately. I did cardio training 3 times a week and weight training twice a week for 60 years. There are certainly individuals with BAV who never have trouble down the line. No aortic root dialation. I am a 48yo competitive cyclist who is very concerned with being able to return to my former ability to hit high effort levels following open heart surgery. Apologies for my slow reply. Rose underwent the procedure last week, and said he would be going home to rest for a couple of weeks before returning in March. After his procedure, Arnold posted the picture above with the following statement, "Thanks to the team at Cleveland Clinic, I have a new aortic valve to go along with my new pulmonary valve from my last surgery. (I'm a 17 year old female)After a heart echocardiogram yesterday we found out I have a bicuspid aortic valve, I originally went in to the cardiologist for extreme fatigue, constant racing heart (avg around 130bpm resting), palpitations, spells where I almost faint, feet swelling and turning purple, etc . If untreated, it can lead to blocked blood flow. Diagnosis was made because pulse dropped to 30 (normally 52), and pacemaker was thought to be needed (no symptoms other than low pulse for a few days). triangle chokes, other blood chokes) could be putting pressure on my heart and cause my aorta diameter to increase? Answers to your questions. Questions about Bicuspid Aortic Valve!! My son was also complaining of shortness of breath with stairs mild and feels tired more easily. The CVTI is waging war against the leading cause of death among American men and women - heart disease. Surgeon Q&A: What is TAVR Valve-in-Valve? Your web site and the links have much good information. Every 6 months it is getting larger. Negative Stress Echocardiography Max Page - Child Actor (Darth Vader in VW Superbowl ad) - Tetralogy of Fallot. Glad to hear that youve found a surgeon and settled on a plan. my age is 20 right now November Cover Star Gal Gadot Is in a League of Her Own A First Look at Diana and Margaret Thatcher in The Crown Season Four Celebs Roast Trump in Rhyme for John Lithgows Trumpty Dumpty Book Brace Yourself for George Clooneys Apocalyptic Movie The Midnight Sky The Best Shows and Movies Streaming This October Inside Netflixs Latest Binge-able Escape, Emily in Paris The Crowns Young Stars on Prince Charles and Princess Di From the Archive: How Hollywood Sharks, Mafia Kingpins, and Cinematic Geniuses Shaped The Godfather Not a subscriber? Sadly, we dont have a crystal ball, though to know what the future holds for any particular individual. I was concerned about his cough last weekend so I was assessing his lungs with my stethoscope when I heard a very pronounced diastolic murmur at his 3rd ICS. However my Sinus of valsalva is dilated between 45-47mm (depending on the machine used). But I recognize that not all cardiologists or heart surgeons would agree. But neither of these procedures are durable for the long-term. There are a multitude of patient-specific circumstances that must be considered when deciding if and when operation is needed. Thank you so much for your explanations, Im 30 years old with BAV 2 instead of 3 leaflets since birth, doctors recommended me to have Echocardiography test each year and so. Search Heart Hospitals It is very difficult to find information regarding the athlete and BAV. Like I said, peoples experiences are all different. The use of a less invasive transcatheter therapy in this . I dont believe there is any evidence that would help us know if some forms are safer than others. In some cases a particular arrhythmia that is responsible for your feelings of palpitations or light-headedness could be identified.and options for treatment could be presented. At the USC Cardiovascular Thoracic Institute, we are dedicated to improving the statistics concerning cardiovascular and thoracic disease such as those once faced by the governor, said Starnes, who also serves as executive director of the Institute. 2. and my valve is working quite well (mild aortic regurgitation). Pop Medicine > Celebrity Diagnosis . (liver cysts noted). Business, Economics, and Finance. My son is 15 and has grown about 4-6 inches in the last year. This can be very frustrating to athletes who are used to being more active. Although bicuspid aortic valves can occur . I would like nothing more than to have this repaired so I can return to my lifestyle, I cant understand why I cant have it fixed as it is my choice to have surgery. Miley Cyrus - Singer & Actress - Tachycardia. You should discuss this possibility with your doctor(s). Measurements of aortic diameter can be made with echocardiogram. Aortic dissection, a tear in the wall of the aorta. I had a ventricle septum defect patched up shortly after birth with no further follow up and a full recovery. Yoga is not included in the classification of sports that is commonly used, but I suspect that yoga would have low to moderate static and dynamic components. Jeff/Doc, I wouldnt be happy just running I want to be the best that I can be at it. Thanks for the infoI really appreciate what you,have to say. He was forced to stop playing football at 11. Do you think running 40 minutes five times a week at that level of beats can increase the aorta rate of growth ? Thus far shes had only minor bruising (shes 6ft and has a solid build). I do not know aorta measurements. Really helpful. Thank you for best websit. Left ventricle (LV diastolic diameter 54mm|58mm, LV diastolic volume 142ml|167ml, LV systolic volume 39ml|57ml, Ejection fraction 72%|65%); There has been a slight increase in the measurements over the last several years, but I am still below the threshold which would require surgical intervention. Ive thought that the next visit to the pediatrician would be a good opportunity to discuss the issue. And of course the problem occurs in everyday, recreational athletes, too. I am followed every 2 years. Also suggested taking low dose of beta-blockers although I have been told the effectiveness has not been proven. Thank you very much for writing such a thorough and well informed article. He left it pretty vague. Having a congenital heart defect means you are born with a problem with the heart's structure. If I ever need surgery to replace my root , I understand that there is an element of complexity for such surgery, but after surgery, is life expectancy for individuals assumed to be shortened at all ?

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